CAPO WEBINAR SERIES

CAPO is pleased to release a series of free webinars. To further our efforts to encourage interdisciplinary excellence in psychosocial research education and clinical practice in oncology, the CAPO Education Committee in collaboration with the CAPO Research Committee has planned a series of webinars of varied topics address psychosocial oncology.

Supporting High-Quality Patient Engagement in Research: Planning, Implementation and Evaluation

Featuring: Julia Abelson, Vicky Forster and Peri Tutelman

The potential benefits of including patients and caregivers throughout the research process are now well-established, and a growing number of research organizations and funding bodies either encourage or require patient involvement. Yet this collaboration isn’t always meaningful or valuable for patients or researchers. In this webinar, three leaders in the field of patient engagement will discuss key strategies and tools that can foster and sustain high-quality patient engagement in research.

Panelists will address questions such as:

• What makes an engagement meaningful and worthwhile for patient partners?
• How can research organizations support and promote high-quality engagement?
• How can researchers plan for and implement high-quality patient engagement?
• What are some key lessons learned from partnering with patients in research?
• How can evaluation support high-quality patient engagement in research?
• What evaluation tools are available, and how are they evolving to meet emerging engagement needs and priorities?

Panelists:
Julia Abelson

Dr. Abelson is a Professor in the Department of Health Research Methods, Evidence, and Impact at McMaster University, a member of the Centre for Health Economics and Policy Analysis (CHEPA) and lead of the Public and Patient Engagement Collaborative. Throughout her career, Dr. Abelson’s research program has been guided by a long-standing interest in how the public interacts with health systems as patients, community members, voters, and taxpayers. These interests have provided the foundation for numerous research studies focused on the design and evaluation of processes for engaging the public and patients in health system decision-making. Through her research, she has developed productive and long-standing partnerships with a wide range of policymakers and health system managers at the provincial and regional governance levels across the country and is regularly invited to advise policy decision-makers and health system managers on the design, implementation, and evaluation of public engagement processes.

Vicky Forster

Dr. Victoria (Vicky) Forster is the Patient and Community Engagement Lead at Women’s College Hospital in Toronto. A cancer biologist by training, she completed a postdoctoral position at The Hospital for Sick Children in Toronto. Her research experience involves various pediatric cancer research topics and survivorship projects. She is also a keen science communicator and was named on the Forbes 30 Under 30 Europe list in the Science and Healthcare category. As a freelance science writer, Dr. Forster has contributed to publications such as The Times and Forbes Health. As a prolific public speaker, she has given talks on survivorship and patient engagement in research to organizations such as TEDGlobal, the Canadian Institutes for Health Research (CIHR), and the Society of Neuro-oncology. A childhood cancer survivor herself, Dr. Forster combines all of these skills to design and build bridges between researchers and patient advocacy communities.

Perri Tutelman

Dr. Tutelman is a Postdoctoral Fellow in the Departments of Oncology and Psychology at the University of Calgary. Her research expertise is centered at the intersection of psychosocial oncology, pain, and mental health. Her work has been recognized nationally and internationally, including by the World Health Organization as evidence on the burden of cancer-related chronic pain in children. As a clinician-scientist, Dr. Tutelman also provides clinical care to children, adolescents, and young adults with cancer through Cancer Care Alberta. Dr. Tutelman is a leader in patient engagement in research. She works closely with patient partners to co-design research that addresses what matters most to patients and their families. Dr. Tutelman is currently co-leading a James Lind Alliance Priority Setting Partnership to establish the Top 10 research priorities for Adolescent and Young Adult Cancer in Canada. She was a 2021 recipient of the inaugural Research Impact Canada Engaged Scholarship Award.

Webinar registration now open :

• FREE to CAPO Members. 
• $15 to non-members

REGISTER HERE

Webinar access details will be provided in your registration confirmation email. Pending quality of recording, this webcast will be available within 30 days of the live webinar.

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

At the end of this webinar, the participants will be able to:

• Understand the CAPO Advocacy committee’s mandate, and involvement and importance of the patient advisors in it activities
• Learn what motivates patient advisors to advocate for PSO
• Review the recent progress done in PSO advocacy and understand how to better advocate for PSO from the lenses of patient advisors

Featured Panelists: Chantale Thurston, Nadine Frisk, Tristan Bilash

Chantale Thurston  is a hearty Winnipegger and daytime accountant. During her free time, she is the board chair of AYA Can – Canadian Cancer Advocacy, which is a peer-led national charity that advocates for adolescents and young adults (AYA) affected by cancer. Chantale was diagnosed in 2017 with Stage IV Appendix Cancer and has thankfully been No Evidence of Disease since her HIPEC surgery in 2017. IG: @ChantaleT1

Nadine Frisk, BSW, is a Leukemia survivor and patient advocate. Her mission is to advocate for enhanced psychosocial support for cancer patients. She is a Patient Advisor and member of the CAPO Advocacy Committee.

Tristan (he/him/human) is a stage 3C ovarian cancer survivor, transgender man, oncology social worker, writer, international speaker and inclusive health advocate. Tristan is a national 2SLGBTQIA+ patient representative with CAPO's Advocacy Committee, a proud volunteer community partner with QueeringCancer.ca, and a friend and advisor to the World Ovarian Cancer Coalition. Tristan’s story is featured in the journal article, “Spare Parts: Navigating Ovarian Cancer As A Transgender Man” which Tristan co-authored with his friend and colleague, Dr. Lauren Walker (Adjunct Associate Professor, Department of Oncology, Department of Psychology, University of Calgary). “Spare Parts” was recently published in the Journal of Clinical Oncology (Volume 40, Issue 9).

Co-chairs: 

Sevtap Savas, PhD., is a patient advocate, cancer scientist, and professor of genetic and oncology at Memorial University, Newfoundland and Labrador. Her goal is to improve the well-being and social-medical outcomes of cancer patients through research, education, public engagement, patient partnership, advocacy, and leadership. She is the Chair of the Advocacy Committee of CAPO (Canadian Association of Psychosocial Oncology).

Kimberley Thibodeau, MSW/CFT, works as a couple and family therapist in PSO at the MUHC since the program was founded in 2008. Ms. Thibodeau has a Master of Social Work from McGill University, is a certified couple and family therapist and supervisor, and a registered psychotherapist. As a clinician, she provides psychosocial services to cancer patients and family members across the illness trajectory through individual, couple and family interventions. She is a recognized expert on the impact of cancer on patients and their family. Kimberley is a CAPO board member; acts as secretary, co-chair of the Clinical Advisory Committee and Advocacy Committee.

DATE: Tuesday, December 12, 2023, 12:00 p.m. - 1:00 p.m. EDT

Webinar registration now open :

• FREE to all 

REGISTER HERE

Webinar access details will be provided via email prior to the webinar. Pending quality of recording, this webcast will be available within 30 days of the live webinar.

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording coming soon:

• FREE to all 

REGISTER FOR RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar Recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar Recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar recording now available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar Recording access details will be provided in your registration confirmation email. 

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar Recording Now Available:

• FREE to CAPO Members. 
• $15 to non-members

ACCESS RECORDING HERE

Webinar recording access details will be provided in your registration confirmation email.

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar Recording Now Available:

• FREE to CAPO Members
• $15 for non-members

ACCESS RECORDING HERE 

Webinar access details will be provided in the registration confirmation email.

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply

Webinar Recording Now Available:

• FREE to CAPO Members
• $15 for non-members

ACCESS RECORDING HERE 

Webinar access details will be provided in the registration confirmation email.

If you are not a current member of CAPO, find out more about membership by going to https://capo.ca/apply