Recording: How can Research Culture Adapt to More Effectively Engage Patients and Caregiver Partners in the Future?

Recorded February 11, 2025 Traditionally, health research has been slow, cumbersome, and confined to scientists. However, rapidly evolving healthcare challenges demand faster and interdisciplinary responses to urgent societal needs. As the research landscape evolves, we have seen the added expertise of patients and caregivers (family and friends) recognized. To fully benefit from their involvement, research culture needs to adapt. In this webinar, we explored the changes needed for reshaping the future of health research to more effectively engage patients and caregiver partners. Featuring: Donna Rubenstein is a patient partner committed to advancing the integration of patient and community voice in all aspects of healthcare. Her views are shaped by personal experience as a patient and caregiver as well as a career working internationally. Dr. Anna M. Chudyk is an Assistant Professor in the College of Pharmacy, University of Manitoba and the host of asPERusual — a podcast for practical patient engagement. Her research career is marked by prestigious National level awards and recognitions, including a Charles Best Canada Graduate Scholarship, a Vanier Canada Graduate Scholarship, and most recently Phase 1 and 2 Patient-Oriented Research — Transition to Leadership Stream Awards, all from the Canadian Institutes of Health Research. Alies Maybee is a patient partner collaborating in many aspects of healthcare including on research projects and areas of service delivery and policy. She looks for new ways to involve patient/caregiver partners in health systems which led to co-initiating EMPaCT, a community table of people with diverse lived experiences focused on health equity.