IPOS 2022: WORLD CONGRESS REIMAGINING PSYCHOSOCIAL ONCOLOGY: EMBRACING VOICES FROM AROUND THE WORLD
TORONTO, CANADA • AUGUST 29 - SEPTEMBER 1, 2022
IPOS 2022 Speakers
IMPORTANT PROGRAM INFORMATION:
IN PERSON ATTENDEES:
SEARCHING IN THE PROGRAM:
ANTHONY P. BOSSIS Ph.D
Use of Psilocybin for the Treatment of Psychosocial Distress in Palliative Care and at the End-of-LifeAnthony P. Bossis, Ph.D. is a clinical psychologist and clinical assistant professor of psychiatry at NYU Grossman School of Medicine and NYU Center for Psychedelic Medicine conducting FDA-approved research with the psychedelic compound psilocybin since 2006. Dr. Bossis was director of palliative care research and co-principal investigator on the landmark 2016 clinical trial demonstrating a significant reduction in emotional distress from a single psilocybin session in persons with cancer, specifically, a rapid decrease in depression, anxiety, hopelessness, and demoralization along with improvements in spiritual well-being and quality of life. He is study director and lead therapist on an FDA-approved clinical trial investigating a psilocybin-generated mystical experience upon religious leaders. Dr. Bossis is a training supervisor of psychotherapy at NYU-Bellevue Hospital and co-founder of the Bellevue Hospital Palliative Care Service. He is on the editorial board of the Journal of Humanistic Psychology and a guest editor (with Charles Grob, M.D.) for the journal’s Special Series on Psychedelics. His primary psychedelic research interests are the treatment of end-of-life existential distress and the study of consciousness, meaning, and spirituality. He maintains a private psychotherapy and consulting practice in NYC.
ASSOCIATE PROFESSOR NICOLE RANKIN
Embracing health equity: opportunities to transform research translation in psycho-oncology
Associate Professor Nicole Rankin is an implementation scientist in the Sydney School of Public Health, Faculty of Medicine and Health, University of Sydney, Australia. Nicole is Director of the Implementation Science Program at Sydney Health Partners, which is a collaboration between the University of Sydney and four Local Health Districts, whose goal is to demonstrate how evidence-based interventions can be successfully implemented and scaled-up in diverse and complex health systems.
A/Prof Rankin’s research focuses on the science of research translation, including how evidence can be more rapidly translated into clinical practice, with a significant focus on lung cancer. Her research portfolio extends from lung cancer screening, early detection, and management through to multidisciplinary care, palliative care and survivorship. Her interests include psychosocial care and how health services can better meet the needs of people diagnosed with cancer and other chronic conditions. Her expertise is applied across a portfolio of research projects, in leading capacity building initiatives such as masterclasses, workshops and conferences, as well as mentoring clinician-researchers and doctoral candidates to develop their careers in research translation.
KIM THIBOLDEAUX With guests: Joette Walters, RN, MSN, MBA and Deren Abram
Raising Our Voices to Reduce Cancer Disparities: Bringing Cancer Care to American Indian Tribal Lands
Kim Thiboldeaux is a nonprofit executive, thought leader, and author who has made her mark on the global stage by ensuring that the patient’s voice is at the center of every conversation about cancer. Thiboldeaux served as CEO of the Cancer Support Community (CSC) for 20 years, from 2000-2020, leading a global nonprofit network that operates at 175 locations, including CSC and Gilda's Club centers, and in multiple hospitals and cancer clinics. Thiboldeaux’s service includes appointments to the nation’s premier panels on cancer. In 2019, Dr. Francis S. Collins, Director of the National Institutes of Health, appointed Thiboldeaux to the Novel and Exceptional Technology and Research Advisory Committee. In 2017, she was appointed to serve on the Biden Cancer Initiative’s Board of Directors.
In serving as a patient advocate on these high-profile boards and panels, Thiboldeaux has brought attention to inequities in our health care system. In 2019, she joined Navajo Nation President Jonathan Nez, Dr. Jill Biden, and leaders of the Tuba City Regional Health Care Corporation in Arizona to mark the opening of the first-ever full-time cancer care and support center on native land in the US. After securing a generous gift from the Barbara Bradley Baekgaard Family Foundation, Thiboldeaux helped convene key Navajo Nation leaders, private sector supporters, and other officials to establish this culturally-adapted program located in an area larger than the state of West Virginia. In 2020, Stand Up To Cancer appointed Thiboldeaux to its Equity Breakthrough Research Review Team, focusing on cancers affecting underrepresented populations. In 2019, the International Psychosocial Oncology Society presented Thiboldeaux with the President’s Community Award for Distinguished Contributions at its global Congress in Canada.
Thiboldeaux’s insights are highly sought after, with interviews including the Wall Street Journal, The Washington Post, PBS, Philadelphia Inquirer, WebMD, and speaking engagements, including a TEDx Talk and White House convenings. She is the author of the 2021 full-length book Your Cancer Map-Navigating Life With Resilience, Foreword by Dr. Jill Biden. Her writing is featured on Medium and also in the Huffington Post. Thiboldeaux graduated from American University with a bachelor’s degree in communications and a minor in Spanish. While at American, Thiboldeaux studied abroad in London and Buenos Aires, experiences that spurred her lifelong zest for travel. She has visited all seven continents, all 50 states, and 50-plus countries, and has no intention of slowing down her exploration of new countries and cultures.
Taming Uncertainty: Facing Cancer in the COVID Era
Roger Levesque speaks to the steep ups and downs of being diagnosed with Stage IV cancer nearly two years ago, his treatments and experience in the medical system during the pandemic, and his insights as a standardized patient helping to train medical personnel.
As an arts journalist for over 35 years and radio broadcaster for over 25 years, Levesque has devoted much of his career to writing about musicians and movies, and programming jazz and global music for several public radio stations in Edmonton, Alberta.
Two personal stories about his diagnosis and treatments published in The Edmonton Journal and The National Post across Canada made him a finalist in the 2020 National Newspaper Awards.
LONNEKE VAN DE POLL-FRANSE
Survivorship care in the new landscape of personalized medicine
Lonneke van de Poll-Franse is Professor of Cancer Epidemiology and Survivorship at the Netherlands Cancer Institute (NCI)/ Netherlands Comprehensive Cancer Organisation and Tilburg University.
Her research focuses on identifying and understanding the physical and psychological consequences of cancer and treatment. In 2009 she set up the Patient Reported Outcomes Following Initial treatment and Long-term Evaluation of Survivorship (PROFILES) registry, which combines population data from the Netherlands Cancer Registry with patient-reported outcomes (www.profilesregistry.nl) as well as information on nutrition and physical activity measured with apps and wearables.
At the NCI - Center for Quality of Life, Professor van de Poll leads the survivorship research program. A key pillar of this program is the collection of PROMs and provision of personalized care and support in daily clinical care. Her observational research informs the development of evidence-based interventions to optimize care and outcomes of survivors; she is PI of several multicenter RCTs on the effectiveness of new models of survivorship care.
Van de Poll-Franse is an active member of the EORTC Quality of Life group, sits on the scientific advisory boards of several European cancer institutes, and participates in EU research consortia on better care and quality of life for cancer survivors.
CAN YOU HEAR MY VOICE?
“Can You Hear My Voice?” follows the one-of-a-kind Shout at Cancer choir, whose members have all had their voice boxes removed, as they prepare for and perform their most ambitious concert - a sold-out performance at London’s historic Tabernacle theater. The film includes spirited performances of songs popularized by Nina Simone, Tears for Fears, and Louis Armstrong, all backed by a professional jazz trio. Along the way, choir members’ cancer stories unfold, revealing their struggles with self-identity, self-doubt, and loss. Far from maudlin, “Can You Hear My Voice?” is triumphantly illuminates the human capacity for resilience in the face of overwhelming adversity.
The film is produced and directed by award-winning Los Angeles documentary filmmaker Bill Brummel - his first film since having his own voice box removed in 2016. Like the choir members, Brummel speaks with the aid of a voice prosthesis.
Moving towards culturally sensitive care for fear of cancer recurrence: A global perspective
Professor Sophie Lebel is a professor at the University of Ottawa and a clinical psychologist with a focus on cancer survivorship and psychosocial interventions. She has contributed to the definition and measurement of fear of cancer recurrence and clinical fear of recurrence, co-authored several systematic reviews on this fear, and developed and validated a model of fear of cancer recurrence. She co-developed FORT, a cognitive existential group intervention for survivors that has been tested through clinical trials. She is currently chairing the writing of clinical practice guidelines for the management of fear of cancer recurrence in Ontario, Canada. She is supervising Ph.D. candidates in her lab who are working on the adaptation of FORT for family caregivers of cancer patients, developing new measures of clinical fear of recurrence, and studying uncertainty and fear of progression in advanced cancer patients who are receiving targeted therapy and immunotherapy. In 2015, she held a colloquium on fear of cancer recurrence at the University of Ottawa that led to the creation of FORwards, the IPOS special interest group on Fear of Cancer recurrence, which she chaired from 2017-2019.
Introducing Fear of cancer Recurrence (FCR) care in a Mexican breast cancer women group
Isabel Centeno is a psychooncologist specialized in chronic advanced diseases. She is a member of the muldisciplinary Breast Cancer Center team at Zambrano Hellion Hospital and a Medicine school´s professor at Tecnológico de Monterrey. She has particular interest in end of life care, fear of cancer recurrence and compassion in Health settings. She is founder of Travesías de Tinta, a creative writing mental health foundation.
Improving consistency and equity of care for fear of cancer recurrence through an evidence-based, culturally sensitive and implementation-ready clinical pathway
Dr. Ben Smith is a Cancer Institute NSW Career Development Fellow at the Ingham Institute and University of New South Wales, Medicine & Health. Ben’s research aims to ensure equitable access to high quality evidence-based survivorship care for all people living with cancer. He has a particular interest in fear of cancer recurrence, digital health, and implementation science.
Fear of cancer recurrence in China, prevalence, risk factors, relationships with other psychiatric comorbidities, and clinical management
Yuan Yang, PhD, is a clinical psychotherapist in Guangdong Mental Health Center, Guangdong Provincial People’s Hospital, China. She is also a member of the Chinese Psycho-Oncology Society (CPOS). Dr. Yang obtained her bachelor degree in Southern Medical University, China, and obtained her Master degree in the University of Edinburgh, UK. She then worked as a research assistant at the University of St Andrews (School of Medicine, with Prof. Gerry Humphris) and Western General Hospital (Edinburgh Cancer Center). Then she returned to China, worked as a clinical psychotherapist in Southern Medical University Nanfang Hospital, and obtained her PhD in the University of Macau, Macau SAR. Dr. Yang’s research mainly focuses on Psycho-oncology, Mood Disorders, Psychiatric Epidemiology, and Counselling and Psychotherapy. She has authored or co-authored over 50 papers in international journals, including Lancet Psychiatry, Lancet Regional Health-Western Pacific, and Lancet Public Health.
Global Psycho-Oncology: Ensuring Equitable and Culturally Relevant Access in Low Middle Income Countries
Psycho-Oncology in Low Middle Income Countries: Importance and Principal Components for Its Development
Dr. Henry is an Associate Professor in the Gerald Bronfman Department of Oncology. She is a FRQS Clinician-Scientist and a psychologist in the Department of Psychology and in the Louise-Granofsky Psychosocial Oncology Program of the Segal Cancer Centre at the Jewish General Hospital. Her research program aims to better conceptualize early determinants of mental health in oncology, leading to the development and testing of interventions to improve the quality of life of cancer patients. Her work combines translational research with a major focus on advanced cancer and head and neck oncology. She developed the FACT/MBIS McGill Body Image Concern Scale – Head and Neck, part of the internationally known FACT Measurement System. She is Co-Director of the FRQS-funded Quebec Research Group in Palliative and End-of-Life Care (RQSPAL) Axis I on optimizing quality of life, a group comprising of over 200 researchers and students across the province of Quebec. As part of this research network and in collaboration with the Center for Research and Intervention on Suicide, Ethical Issues and End of Life Practices, she is heading a Pan-Canadian initiative to improve clinical and research capacity to address suffering in patients requesting Medical Aid in Dying. Dr. Henry has received funding from the Canadian Institute for Health Research, the Fonds de recherche Sante - Quebec, Genzyme and Roche. She is a board member of the International Psycho-Oncology Society (IPOS). Her international work with IPOS and the World Health Organization involves chairing Training Academies designed to build capacity for psycho-oncology in Africa and more broadly for low-middle-income countries.
Challenges of psychosocial care in cancer patients during the pandemic in Perú. Access, adaptation and cultural perspective
Lourdes Ruda Santolaria has a degree in Clinical Psychology from the Pontifical Catholic University of Peru and Master of Studies Theorists in Psychoanalysis from the same university. She is shaped like Psychotherapist by the Center for Psychoanalytic Psychotherapy of Lima and she has a specialization in Psycho-oncology. She is currently an Associate Professor in the Department of Psychology of the Pontifical Catholic University of Peru and responsible for the Project for the Positioning of Psycho-oncology in the country. She dedicates part of her clinical practice and research work to the area of Psycho-oncology. She has participated in this sense, in congresses national and international and published articles referring to this theme. She is a founding member of the National Association of Psycho-oncology of Peru.
Role of cultural factors in psychosocial care of cancer patients and their caregivers
Dr. Santosh Kumar Chaturvedi. MD, FRCPsych., Consultant Psychiatrist Leicestershire Partnership NHS Trust, Leicester, UK. Former Dean, Behavioural Sciences, & Senior Professor of Psychiatry, National Institute of Mental Health & Neurosciences, Bangalore 560 029, India. More than 120 publications on Psychosocial oncology, end of life care, spirituality & palliative care in different International and National journals, & Books. Edited and published five books on the subject, including one on Communication skills in Palliative Care, published by VHAI and latest one on Clinical Psycho Oncology: Indian Perspectives and Research, 2021. Overall, more than 620 scientific publications.
Local is Global: Connecting psychosocial care for cancer patients through the Ubuntu philosophy
Dr. Christian Ntizimira is the Founder/Executive Director of the African Center for Research on End-of-Life Care (ACREOL), a non-profit organization aims to bring socio-cultural equality through “Ubuntu philosophy in End-of-life Care” in Africa. He is a Fulbright Alumni and graduated from Harvard Medical School, department of Global Health and Social Medicine. Dr. Ntizimira is the winner of the prestigious Tällberg-Stervos Niarcos Foundation-Eliasson Global Leadership Prize 2021, for his passionate advocacy for palliative care in Rwanda and elsewhere in Africa, based on his deeply held belief that dignified end-of-life care is a human right. He pioneered integration of palliative and end of life care into health services rendered to Rwandan cancer patients and in the community settings. In 2018 he became the first advocacy/policy champion among extraordinary individuals are making a significant contribution to developing palliative care in low- and middle-income countries for World Hospice and Palliative Care Alliance (WHPCA).