I n the early 80's, Canadian Cancer Centres, were
beginning to recognize the importance of attending
to not only the biological aspects of cancer but also
the socioemotional aspects. Much of the psychosocial
initiative of patient care was being driven by the
European Union to Fight Cancer (IUCC) and their discussion
paper on Comprehensive Cancer Care.
By 1981, Psychosocial programs were,
in a very limited way, in place in most of the Canadian
Cancer Centres: Vancouver, Calgary, Edmonton, Manitoba,
and, Toronto. Because these programs were so new,
most early practitioners felt professionally isolated.
Not only were they pioneers in their respective centres,
but they were looking for professional models to apply
to medical settings, where programs had not been previously
been in place. Further, without a model, no framework,
and no resources, it became the individual survival
strategy to reach out.
In 1980, John Farber, from St. Boniface
General Hospital, Winnipeg, Manitoba, attended a workshop
on Quality of Life sponsored by NCIC in Toronto, Ontario.
It was clear from this meeting that many "pockets"
of psychosocial research were in progress in Canada.
Lacking, however, was any organized network. In the
fall of 1982, John met with Dr. Kathryn Taylor, from
York University and during their visit the idea of
organizing a national association was discussed.
CAPO founding members Rona Jevne,
Barry Bultz and Margaret Hovanec in 1983 at the Cross
Cancer Institute, Edmonton.
The first documented psychosocial meeting
was coincidentally held in June 1982 when Dr. Margaret
Hovanec of Sunnybrook Cancer Clinic in Toronto visited
Dr. Ronna Jevne of the Cross Cancer Institute in Edmonton
and Dr. Barry Bultz of the Tom Baker Cancer Centre
in Calgary, Alberta. On June 6 and 7th, 1983, the
following year, they met again in Edmonton, with two
objectives evolving from this meeting:
- Developing a frame of reference to identify
research possibilities.
- Exploring the possibility of a common front
on which to proceed
The initial meetings of these pioneers
grew out of the need to be connected with colleagues.
Subsequently, a good deal of the time was spent discussing
common issues and establishing a common understanding
of the similarities and differences of their respective
cancer centres. The remainder of the time was directed
towards developing a frame of reference and identifying
target objectives. Minutes of that meeting indicate:
"Considerable enthusiasm was stimulated by these discussions
and it is likely that very productive long-term outcomes
will be forthcoming."
The challenge of keeping the momentum
up was the task at hand for Margret, Rhona and Barry.
It was clear that a national meeting needed to take
place to bring others with similar circumstances together.
Barry stepped forward with a plan to host a meeting
in an attempt to help work towards the establishment
of a national workgroup in psychosocial oncology.
A conference was planned for Calgary, Alberta, May
8-10, 1985, entitled Psychosocial Oncology: A Practical
Approach to Assessment and Counselling of Cancer Patients
and Their Families. K-note speakers were Grace Christ
and J William Worden. National representation was
sought because one of the important outcomes for the
Calgary meeting was to determine whether a need existed
for a national psychosocial organization. As the registration
for the conference began poring in it be came clear
that there would be a great deal of interest and support.
A total of 190 professionals registered from every
region in Canada. As well there were several Americans
in attendance.
The "Workgroup Formation Meeting" was
held as the last session of the conference. Colleagues
representing major Canadian regions (Paul Aucoin-Ottawa,
Margre Hovanec-Toronto, John Farber-Winnipeg, Ronna
Jevene-Edmonton, Richard Doll-Vancouver, and Barry
Bultz-conference chair-Calgary) were invited to the
stage to hear "the will of the audience". The rest
is history. The group met several times over the next
year and a half, worked on and wrote up a constitution,
came up with a name-CAPO.
Although a number of objectives were
formulated for a budding organization, initially the
emphasis was on the individual support that contact
with one another would give to those practicing in
relatively isolated environments. Clearly the intent
was to further the goals of psychosocial oncology;
to develop a network of psychosocial oncology, to
raise the profile of psychosocial oncology; and to
promote comprehensive psychosocial care of cancer
patients and their families.
Between 1985 and 1986, John Farber chaired
a steering committee which included Paul Aucoin of
Ottawa, Richard Doll of Vancouver, Barry Bultz of
Calgary, Margaret Hovanec of Toronto, and Ronna Jevne
of Edmonton. The purpose of the Committee was to formalize
the association. This included articles of incorporation
that saw CAPO registered as a non-profit organization
in 1987. The bylaws defined the organization's mandate,
purpose, and structure. Great care was taken to ensure
key disciplines would always be represented, but that
the balance of power would never reside with any one
group.
Since those early days, CAPO/ACOP has
grown into an internationally recognized organization
that actively pursues its goals of promoting excellence
in clinical and research activities in psychosocial
oncology. The organization has produced a newsletter
minimally twice per year, held an annual conference
alternating between the east and west, was a partner
in developing the Centre for Behavioural Research
and Programs Evaluation of the National Cancer Institute,
is a member of the Board of the National Cancer Institute,
and in 1999 drafted and adopted a set of Canadian
standards for psychosocial oncology. Today, CAPO/ACOP
members are involved in all levels of clinical care,
planning, research, and education in cancer care and
are regular participants on local, provincial, regional,
national, and international planning groups.
In spite of the increasing size of the
organization, the membership has continued to make
personal contact a priority and have open discussions
that have forwarded the objectives of the organization
and ultimately improve patient care. It provides a
collegial and supportive home, on both a personal
and professional level, for those working in the very
challenging arena of psychosocial oncology.
CAPO's Founding Members
Paul Aucoin
Barry D. Bultz
Richard Doll
John Farber
Margaret Hovanec
Ronna Jevne
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M.S.W. Social Work Ottawa
Ph.D. Psychology Calgary
M.S.W. Social Work Vancouver
M.A. Psychology Winnipeg
Ph.D. Psychology Toronto
Ph.D. Psychology Edmonton
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